Fabry disease is a rare genetic condition.

It affects around 1 in 50,000 men. Women can also be affected but the prevalence is unkown.

We are a support group led by people and families living with Fabry Disease in New Zealand, and our aim is to provide information, support, and to advocate for better access to treatment for our community.

Do you or someone you know have Fabry Disease?

We're always looking to connect with families who are affected by Fabry disease so that we can share experiences, information, and support where possible.

Get in touch today

News & Updates

Fabry Gene Therapy Trial

The Medicine Gap

Rare Disorder Framework pushed back