About us

Fabry NZ is a small, patient-led organisation supporting individuals and families affected by Fabry Disease across New Zealand. Together we provide support for ourselves and others, advocate for greater acknowledgement and treatment options within the NZ Health System, and connect patients and families with resources where possible.

Fabry NZ is led by people directly impacted by the condition. We understand the realities of living with Fabry disease — from diagnosis and day-to-day management, to the challenges of accessing appropriate care and treatment in New Zealand.

The Fabry NZ charity is led by Deborah Kleyer who you can reach by email at members.Fabrynz@gmail.com. Or alternatively contact our Fabry Founder Liz Hunt, the facilitator for our FaceBook page at  fabrynewzealand@gmail.com


Fabry NZ became a New Zealand registered charity in March 2026.

If you or someone you know has a diagnosis of Fabry Disease, then please feel welcome to connect with us, learn more about the symptoms, and join us on Facebook.

Phone:
Deborah - Group Lead 021 2443 987, or
LIz - Group Lead 021 0749 667

Founder of Fabry NZ Liz Hunt with her son James McGoram, who both have Fabry Disease. James was previously the chair of Rare Disorders NZ