Resources

Please note: we're still in the process of building this website as a useful resource - feel free to get in touch if you have suggestions or feedback.




Do you or someone you know have Fabry Disease?

We're always looking to connect with families who are affected by Fabry disease so that we can share experiences, information, and support where possible.

Get in touch today

News & Updates


The Medicine Gap

Rare Disorder Framework pushed back

Pharmac Review