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You can Find us on Facebook or you're welcome to send us an email at fabrynewzealand@gmail.com. Otherwise leave us a message in the form and we'll get back to you as soon as we can.

Please bear in mind we're volunteers and may take a little while to reply.

Do you or someone you know have Fabry Disease?

We're always looking to connect with families who are affected by Fabry disease so that we can share experiences, information, and support where possible.

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News & Updates


Time to Fund Fabry - Campaign Update

Sign our letter to PHARMAC

Liz's story - the impact on my family