About us
Fabry NZ is a small collection of people affected by Fabry Disease, who together provide support for themselves and others, advocate for greater acknowledgement and treatment options within the NZ Health System, and connect patients & families with resources where possible.
If you or someone you know has a diagnosis of Fabry Disease, then please feel welcome to connect with us, learn more about the symptoms, and join us on Facebook.
The Facebook group is facilitated by Liz Hunt who you can reach by email at fabrynewzealand@gmail.com.
Phone:
Deborah - Group Lead 021 2443 987, or
LIz - Group Lead 021 0749 667
Founder of Fabry NZ Liz Hunt with her son James McGoram, who both have Fabry Disease. James was previously the chair of Rare Disorders NZ
