Resources

Please note: we're still in the process of building this website as a useful resource - feel free to get in touch if you have suggestions or feedback.


For Fabry Support phone:
LIz - Group Lead 021 0749 667, or
Deborah - Group Lead 021 2443 987 


Do you or someone you know have Fabry Disease?

We're always looking to connect with families who are affected by Fabry disease so that we can share experiences, information, and support where possible.

Get in touch today

News & Updates


First ever Fabry Coffee Meetup

Time to Fund Fabry - Campaign Update

Sign our letter to PHARMAC