Fabry Gene Therapy Trial

2 Gene therapy trials for Fabry disease have opened in Melbourne and the Fabry community in NZ will invited to an info session in coming weeks.

Thu Aug. 18th 2022



Kathy Nicholls from the Fabry research and treatment programme in Melbourne has announced that they have opened 2 gene therapy trials for Fabry disease, and are planning a Zoom information session in the coming weeks for those of us in NZ. Anyone in the Fabry community who is interested would be welcome to attend.

A date and time are still being finalised but we will let you know as soon as this is in place. The session will be held in conjunction with Dr Bryony Ryder, who most of the community know well through her work in metabolic health.

Stay tuned for more information!

Do you or someone you know have Fabry Disease?

We're always looking to connect with families who are affected by Fabry disease so that we can share experiences, information, and support where possible.

Get in touch today

News & Updates


Time to Fund Fabry

Our Stories

Big Funding Boost for PHARMAC