Fabry Gene Therapy Trial

Kathy Nicholls from the Fabry research and treatment programme in Melbourne has announced that they have opened 2 gene therapy trials for Fabry disease, and are planning a Zoom information session in the coming weeks for those of us in NZ. Anyone in the Fabry community who is interested would be welcome to attend.

A date and time are still being finalised but we will let you know as soon as this is in place. The session will be held in conjunction with Dr Bryony Ryder, who most of the community know well through her work in metabolic health.

Stay tuned for more information!