Rare Disorders White Paper Launch at Parliament
Wed March 18th 2026
Fabry NZ had the honour of attending the Rare Disorders White Paper launch at Parliament last week. Deborah represented our community and joined other rare disorder support leads at the event. It was a very encouraging occasion, with positive feedback from government, industry, clinicians, and researchers, along with strong collective support for progressing the implementation of New Zealand’s Rare Disorders Strategy. Thank you to everyone in our Fabry community who participated in the survey and contributed to the insights that helped make this publication so well received. To find out more on the importance of your voice in the White Paper and what it is, go to: https://raredisorders.org.nz/about-rare-disorders/white-paper-2026/
