Rare Disorders Strategy released

Fri July 26th 2024



The release of the Strategy marks a significant moment for the rare disorder community and Rare Disorders NZ, who have been advocating for a Strategy for over 20 years. An equitable future for people living with a rare disorder is another step closer. Wondering how this could affect you? Visit the Ministry of Health website to download the strategy - it's written in accessible language and is well worth the read.

Do you or someone you know have Fabry Disease?

We're always looking to connect with families who are affected by Fabry disease so that we can share experiences, information, and support where possible.

Get in touch today

News & Updates


First ever Fabry Coffee Meetup

Time to Fund Fabry - Campaign Update

Sign our letter to PHARMAC