Sign our letter to PHARMAC
Mon Aug. 12th 2024
In the last week of August we intend to send a letter to Pharmac Chair Paula Bennett and Chief Executive Sarah Fitt outlining our hope to meet with Pharmac, prioritise funding for Fabry medications, and discuss improved pathways for rare disorder medicine in light of the Pharmac reforms and the Rare Disorders Strategy.
We'd love to see as many people as possible from the Fabry community in NZ - and from kiwis with Fabry living overseas - co-sign this letter. To do this we're sharing a draft of the letter, along with a form you can complete (only three questions) to add your name.
