News & Updates

First ever Fabry Coffee Meetup Sat Nov. 2nd 2024

Time to Fund Fabry - Campaign Update Tue Oct. 1st 2024

Sign our letter to PHARMAC Mon Aug. 12th 2024

Liz's story - the impact on my family Sun July 28th 2024

Rare Disorders Strategy released Fri July 26th 2024

Time to Fund Fabry Sun July 14th 2024

Our Stories Mon July 1st 2024

Big Funding Boost for PHARMAC Wed June 26th 2024

Fabry Gene Therapy Trial Thu Aug. 18th 2022

The Medicine Gap Sun Sept. 5th 2021

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Do you or someone you know have Fabry Disease?

We're always looking to connect with families who are affected by Fabry disease so that we can share experiences, information, and support where possible.

Get in touch today

News & Updates

First ever Fabry Coffee Meetup

Time to Fund Fabry - Campaign Update

Sign our letter to PHARMAC